From Mansura, La.: A family is working to support research for a rare genetic disorder. They hope to raise funds for a gene therapy research project. The family's son has been diagnosed with a condition that is reportedly the only known case in his state.

His father had initially dreamed of his son participating in certain activities, but was told this would be impossible after the diagnosis. The boy has found a way to defy expectations, participating in a thrilling activity. Further details about the family's efforts and the boy's achievements are available.